Please pray for Jaykob Michael

Well, I knew this day would come. The day Jaykob didn't get an A+ on his report card. We've just been rolling right along with all the good reports that I didn't want to think about Jaykob having any bad days. Well, for starters, he's doing great on the nasal cannula. His respirations are down and his oxygen saturation looks great. The only thing is, sometime he will wiggle his way out of the nasal cannula or pull it off, and as soon as he does that his oxygen saturation will go down. All this means is that he's going to have to be in oxygen a little while longer than I was expecting. the other thing is that this entire time he's been on continuous feeds, meaning that his milk is constantly running through his feeding tube. Well, yesterday he started on what they call bolus feedings. This is where they will let his milk run for an hour and a half then for an hour and a half he won't get anything, then they'll repeat the process. He did great with the first one while I was there, but I talked to his nurse this morning and he spit up after two of his feedings last night, so he's back on continuous feeds. In order for them to even start thinking about Jaykob going home, he has to be able to tolerate his feedings, so this is just a little setback. I realize, though, that he IS going to have bad days. We have been so blessed to be making nothing but improvements that I didn't want to look for the day that we would move back instead of forward. Although, I'm discouraged about it, I'm still proud of my little man and how much he's been fighting this all along. So just pray that the next go-around he will be able to tolerate the feedings, and that he will soon not need the oxygen. We wanna get our little guy home, so he's got to be able to do these things.

Jason and I went to see Jaykob tonight. We were surprised to see that he's out of the warmer bed (what Jason called his "french fry warmer") and into a big boy crib!

Also, say a special prayer for him tonight. He didn't spit up all day, so they decided to go back to the bolus feedings. Instead of every 1.5 hours, though, they're gonna try him on 2 hour feedings. Hopefully he will tolerate them well. I will let you know how he does.

Montana minitruckers pray for you and your lil one

my wife and i went through almost exactly what your going through. but your little boy is improving faster then ours was. my little boy's a twin and born 2lb 3oz, he had premature lungs, 3 holes in his heart, blockage in his small intestine, and the flap in his esofages(SP?)wasn't fully developed. i didn't get to hold him till he was 3 wks old when he got of the ventalator. we almost lost him 3 times, in the 5 months that he was in the hospital. so i know how hard it is for you guys. there are going to be times that it seems like he's not getting better, but he will. and before long you will have your little boy home. my wife and i will keep your family in our prayers.

I just thought I'd post a quick update about baby Jaykob...
Well, Jaykob has been back on bolus feedings since Saturday morning and he is tolerating them pretty well. Let's hope he can keep up with it. As long as he does that, then we'll be one step closer to going home.

Another exciting thing happened tonight...Jaykob's daddy got to hold him for the first time!! I know he was so glad that he finally got to do that.

it really hits me hard everytime i hear about a baby not doing well. from the way it sounds he has come this far, and aint gonna give up. your in my prayers girl!

I'm glad he's doing better,little guys a fighter.Hope he gets to come home soon!

Hopefully the lil trooper makes it. Sounds like everything is getting a lil better. Pray it just gets better and better.

Hopefully he will recover fully and be able to come home and drag his first minitruck.

Here's a short update on baby Jaykob...he had his first two feedings from abottle today and he did great with them. I missed it, though, because Idecided to go a little later and get some schoolwork done at home. I amdefinitely going to be there for at least one feeding tomorrow and hopefullyI'll get to do it. So far he's only going to get two bottle feedings a dayand the rest will be tube feedings like he's had. With him still breathingpretty hard, having ALL feedings with a bottle would wear the poor littleguy out. This is still a step forward, though. So, YAY for my little guy!

Edited: 3/28/2006 9:23:17 PM by TowHOE

Well, I just had a tidbit of good news. Little Jaykob has been on room air all day! When I got to the hospital to see him this morning, I did the same thing I always do...I went to tell him good morning then went to check the level of his oxygen. Where it's been either 25 or 50 here lately, today it was at 0!! We are now doing 3 bottle feedings a day, and he's doing minimal spitting up. They do turn his oxygen up to 25 during bottle feedings just to help him out when he gets worked up and stuff. So, we're making progress!!